22q11.2 DELETION, DIGEORGE SYNDROME, VCFS

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22Q 11.2 DELETION/DIGEORGE SYNDROME/VCFS

22Q and You Center
Resource for families of children with 22Q; Children’s Hospital of Philadelphia.
215-590-2920
www.chop.edu/centers-programs/22q-and-you-center

The 22Q Deletion Center at Nationwide Children’s Hospital
Resources, conferences, clinical research and publications for children with 22q 11.2 Deletion Syndrome.
www.nationwidechildrens
.org/specialties/22q-center

22Q Family Foundation
National alliance of parents and professionals providing information, awareness, resources and educational consulting.
725 Clubhouse Dr.
Aptos, CA 95003
831-200-4227
www.22qfamilyfoundation.org

The International 22q 11.2 Foundation, Inc.
Information, family support and resources.
877-739-1849
www.22q.org

Massachusetts General Hospital 22Q11.2 Clinic and Resource List
Provides expert, evidence-based care, research, resources and healthcare guidelines for patients with DiGeorge Syndrome, Velo-Cardio-Facial Syndrome, and Conotruncal Anomaly Face Syndrome, and others.
617-726-1561
www.massgeneral.org/children/services/treatmentprograms
.aspx?id=1815

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